Thursday, April 12, 2012

Update:

Baby Center has raised us 2,400$ for the test! WAY TO GO GIRLS! I sound like a broken record but THANK YOU THANK YOU THANK YOU!!!!

We leave for chemo in 20 minutes, these days are incredibly long because you have to sit in clinic, get her blood drawn wait for results, they run fluids, see the doctor for a full physical, then they start the process of getting her a room. I got lucky the last time we had Chemo and my sister sat with me (It really is a boring day) but today I have the hunger games to keep me busy I suppose. Plus some extra Mally snuggles are always welcomed.

You can totally see her 2 teeth when she smiles now. I've got my camera ready for LOTS of pictures for her last round. Hoping we can get a picture of Kady and Mally together. Sending my Mom for cupcakes to celebrate Kady and Mal's last round of chemo! SO PROUD OF OUR GIRLS! Kicking Neuroblastoma's ass together!

I start counsling next week Thursday. Looking forward to curbing some of this anxiety and laying out all of the big issues I'm having. Denial is setting in, I just want to go home. I want life to be "normal" again. My girls need to go home, they need to sleep in there own beds, I had a hard time packing for chemo since I'm totally out of my element. ARRRGGGGGGGGGG, I am just feeling so f$^%ing lost right now.

4 comments:

  1. Thinking of Sweet Mallory - BBC Sept member here. I think of her Everyday!!! I cannot WAIT until we all have true tears of JOY when we, I said we -hahhaha, get the results that Mallory is good to go!!!!!
    xoxoxoxooxooxooxoxoxoxoxoxooxoxooxo

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  2. My prayers are with you and your family. <3 Have you heard of Scarlett? She is in my birth club (October 2010) on BBC and was diagnosed with cancer in her brain after her 2-month well visit to her pediatrician. If you aren't already familiar with her story, it might help you to get in touch with Brandi.
    www.starringscarlett.com

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  3. Whenever we went in for chemo I would ask them for a private quiet room (this is before the new hospital was built and everyone waited in the playroom together) and I'd snuggle up in a chair, ask for a blanket and some pillows and Gwen and I would sleep till they were ready for us! Sure helped pass the time! But Gwen was a lot younger than Mallory and probably slept a lot more than she does and needed less entertaining!

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  4. Good luck... Hang in there, there are clearer, blue skies ahead..... More prayers for you and your family.

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