Wednesday, April 11, 2012

ALK Test

We first of all want to say Thank You once again for all of the help from Baby Center and everyone that has helped us to raise the money for our sweet peanut to be able to get the test.

I was finally able to contact the hospital and talk to our social worker about this. He spoke with Dr. Sholler who believes that this test does NEED to be done regardless of the insurance company. The hospital is going to help us FIGHT them to cover it. I told them that regardless of the insurance we want it sent out as well, so if we recieve bills in the mail we have over 2/3rds of the money to cover the test. We will not just send the insurance company a check willingly, we will FIGHT it! I told them if Mama Bear needs to call that they can give me all the resources I need to back our claim so that I can have all my ducks in a row when I confront them about the issue. Another issue is the test is out of state (Childrens Hospital of Philidelphia) because they do not do it in Michigan yet, although Van Andel Reasearch Insititute is working on getting the stuff to test for the ALK gene here eventually.

They are sending the test out as we speak!!!

So we will keep everyone up to date on the progress of this but for now we are rejoicing in the fact that they are finally sending it and we will have answers hopefully soon.


  1. Hi, my name is Kayla and I found your story on BBC. first I hope your sweet little girl continues to fight and be a strong girl. I also wanted to offer my help in regards to your insurance situation. I have delt with my own insurance company denying claims for my cancer testing/treatment so I can understand how frustrating it is. I also have a lot of websites to direct you towards to help with any cost associated with your daughters care.

    Good luck with the big and little (and as you know the insurance co is one of the smaller) fights. I will keep you and your baby girl in my thoughts and prayers.

  2. Awesome news!!!!!!!!!! Keep fighting!