Mallory ended up getting a dose of morphine last night, she just could not calm down. She had this terrible cry that I have never heard in my life. It just broke my heart. She slept really great after that 3-9 which is the longest she has ever slept.
We also went over with the doctors about the dreaded word "discharge". They brought up how we might go home today, Didn't you just say my baby had cancer and your talking about sending us home? I pretty much had a breakdown everytime someone would come in. I finally just said, there is NO way I am thinking about going home until we get the pathology report, the MIBG scan and the bone marrow scan are complete. I want a game plan of everything before they even THINK about discharging us. We are not even close to being comfotable with the broviac, changing caps, flushing the lines and changing the dressings on it.
We would LOVE LOVE LOVE to be back in our own house, with our chatty 2 year old and our obnoxious never ending meowing cat but I have to be prepared, we have to be comfortable. I'm glad I finally got the courage to portray how I was feeling and express it with words. But tonight we are totally working with the nurses and they are going to get us to be pro's before we get home.
They are currently setting up the homecare system which will include our medical testing supplies and also a nurse that will come and help us out also. Which I am so VERY thankful for.
Still waiting on the pathology report which is the HUGE report that will tell us exactly what we are dealing with here. I hate waiting, this is the worst part, not knowing. We were also just informed that Mallory will start iodine (to protect her thiroid) on wednesday, then the radioactive isotope injection (and no she won't glow because of it, yes, I totally asked) on thursday and the scan on friday. Also bone marrow will be friday as well. (I was off on the dates, we've been told so many different things) So we have a week of waiting, Ryan returned back to work this week so I have full day of visitors tomorrow and some on wednesday but I am looking forward to having company! Thanks Everyone!
Ohhh and we hit 10,000 views! WOW, Just WOW! Thank you everyone for your continued support!
-Ashley
Two months later she was diagnosed with Neuroblastoma cancer.
After being Stage 4, enduring 6 rounds of chemo, two major surgeries:
This little fighter was declared in remission on May 18, 2012!!
This is her story.
If you FOUND our balloon from our Wayland, MI Balloon Launch on Mallory's Birthday leave a comment or email us at sweetbabymallory@gmail.com
