I am sitting here eating hot dog buns, yep totally honest, open and not gonna lie I am pretty much really drunk. So to sober up I am eating hot dog buns (It's the only fresh bread we have in the house currently so I know it probably would be much more appropriate to say bread but that's not the case). I have 100% decided that I am writing this for ME, for Mallory, and we write this because we are not here to butter up Cancer, any of the crappy things that come along with it, or the situation we are in. And I am 100% that I am REALLY drunk right now and I needed it.(THANKS MICKELLE!)
Ryan and the girls are sleeping, and yep I am sitting here eating hot dog buns. I am pretty much as awesome as it gets.
I will probably regret drinking by the time 8 am rolls around.
I tried to lay down, but I have sleep induced anxiety, pretty much my bun of messy hair hits the pillow and every possible situation runs through my head. Cancer is not only consuming my child but me to. I am physically losing my hair, it looks like chubahka (however you spell it) is living in my bathroom currently. So when you pick stray hairs out of Mallory's mouth assume they are from me because they are. My house is covered in hair and I can't blame my cat this time.
I can't believe it's been over 2 months since Mallory has been diagnosed, seriously where did 2 months go? Ever since this past weekend she has laid down at EXACTLY 11 every night, she's been eating 4-6 ounces, and is just doing great! She is back to normal baby mode again. We have scheduled to be admitted again friday for Chemo, they should have her pathology results back by then and a game plan ready so we are just being put down for that day. We have nothing to go by except this.
This week is dedicated to vegging out, cuddling up, and answering non stop phone calls in between. After several phone calls today I got prescriptions refilled, questions answered and insurance information filled out. Monday is done (CHECK!), we should hear something tomorrow about an admitting time and possibly pathology results, but most likely Thursday for those is what they told me. They have to grow the tumor in a petri dish and do tests on it which is why it takes so long. If only they knew how to cure the tumor instead of growing it would be nice.
I did forget to mention that we picked up Jillian yesterday and I was pleasantly surprised to hear her say "Lets GO! READY". She loves staying with Nana and Papa but she was ready to come home. She JUST turned 2 on December 30th so she is JUST understanding things a little bit more, so it freaks me out to leave my Jillian with anyone for long periods of time because I am terrified of her not remembering what "home" really is. (Not that my parents don't do an AMAZING job, because I totally always get the same kid back that I left with them. I am pretty sure she learns a few new words every time she's there too which is always a PLUS. Our new favorite "STOP THAT"). This is not the case, she is begging me for attention 24/7, I love the extra snuggles, the kissy lips, and the non stop chatter. I miss this when we are in the hospital, it breaks my heart. It's also hard to bring her up there, she is a LOT of work, we are constantly saying "no", and it just isn't fair for her because it isn't any fun. She deserves fun, she deserves normal, she just deserves so much and right now so much of our time is dedicated to Mallory's care that I try not to lose sight of this. Our goal is to have a well rounded child, with a stable home, great parents, and an all around FUN childhood. And the fun part is only possible if we keep her "innocent" as long as possible. We are trying so hard to make the best out of this.
So tonight was good, I did cry, but I laughed, I laughed a lot and it felt GREAT! I climbed into bed, touched Mallory's head and decided I couldn't sleep but now that I ate my hot dog buns I think it's time to try again.
Good Night All!! :-) - Ashley
Great post...I hope the hot dog buns didn't make you sick! And I'm happy to hear Mallory is smiley today :))ReplyDelete
Good for you!!!ReplyDelete
You are doing a great job with Jillian AND Mallory both. No worries there. Jilly is a happy, funny, adorable and smart little 2 year old. Way to go, mom and dad, and way to go Nana and Papa! You guys truly are making the best of a really crappy situation, and that's the best that anyone could ever ask for. Your little girls' smiley faces say it all! Keep smiling and laughing, and you can make it through this.ReplyDelete
I have a gift for Miss Mall- if you will allow me to have your address I would like to send it, if not I understand. It's kind of weird to give your address out to a stranger. ChrisReplyDelete
that's such a sweet gesture, what a huge heart you have.Delete
Nahhh Chris it's not weird! Mallory has received cards and gifts from LOTS of people we don't know. It's pretty incredible, she got a package from INDIA. How awesome is that! I can't wait to show her all the amazing things she has received from total strangers, it just melts my heart!ReplyDelete
Mallory & Jillian's Bears for Smiles bears went out today <3ReplyDelete
I'm sure Jillian will love the bear, that's nice.Delete