Mallory had clinic this morning, low and behold they went to attempt to draw blood from her broviac (they always try before the draw it through her arm) and it WORKED! I only can hope that it continues to work for the rest of treatment. Having to hold my baby down while they draw her blood breaks my heart, this just makes it much easier.
Her labs were within reason for just being done with chemo (on the low scale but thats what chemo does) except her hemoglobin. It was at an 8.2, typically they do transfusions at 8.0 but this being said they were going to wait till Monday to do it, but I told them I wanted to get it done and over with. We could wait till Monday but that would mean Mallory would still feel crummy, she would be lethargic, and be difficult to feed and get to sleep. So now my baby has regained her color, she looks great, and is feeling much better. Each transfusion takes 3 hours once they get the blood up to the floor. It takes an hour or so for them to get the blood up to the floor so it took quiet awhile to get going but once we did we relaxed, Mallory snuggled up to me for 3 hours straight and it felt great.
Another thing I found out was the blood Mallory received today was from a blood donor through West Michigan Blood http://www.miblood.org/
So if you've donated recently and had A+ blood you could have helped her out!!! I am super excited about the blood drive, they are trying to come up with 2 buses for the event so more people can donate!!!
Please make an apt at https://
One thing I did today that I was extremely proud of was I gave my daughter a shot of Neupogen. Now I am not happy that I may have to give my daughter daily injections but if you would have asked me a month ago if I could do it, I would have said no, absolutely not, no way. And today I did it. I know that this will help her body recharge faster, and the more chemo she has the more often she will need these injections. After round 3 they are predicting she will need them everyday so I HAVE to do them. And I can. It's not fun, I don't enjoy it but I am going to do whatever it takes to help my daughter win this fight! Even if that includes injections into her sweet chubby baby thighs on a daily basis. She is strong, she's such a trooper, through all the poking and prodding this little girl is resilient, she still laughs, giggles, and melts your heart.
We now go from appointments every thursday to every Monday and Thursday while she receives the neupogen. So yes I have plans every Monday and Thursday for the next 8 weeks. On top of that we have Scans, more tests, and other appointments for Jillian (2 year check up and her eye doctor apt).
I will be consulting with her pediatrician because they believe she may have torticollis. Mally favors one side of her head and she is developing a slight flat spot on one side of her head, so hopefully they can correct it with physical therapy and some neck exercises to fix the problem. (Just what I need MORE APTS! lol)
I also would like to inform the general population that it is RUDE to park your vehicle so close to someone elses that they themselves CANNOT get into there own car without getting in on the passenger side and have to lift a baby seat over another carseat. So needless to say I am not apologizing for the note I left on your car if that was you.
Hope everyone had a PLEASANT DAY! :-)
We got the 2nd bus! I just logged into the Michigan Blood site to check our appointments, and it's listed!!!! :)ReplyDelete