Sunday, July 8, 2012

This little light of mine

Isn't she just so perfect, so kissable, so sweet?

I am proud to be her mom!

We are anxiously awaiting this week, we do another catacholomine test to see where her levels are at. This past test we received meehhhh not the numbers we had hoped for.

So tomorrow starts Day #1 of only formula for our little chick-a-dee so we can see if maybe her diet did in fact effect her numbers. I tried diligently to watch everything she ate according to the sheet they gave us (which includes peanut butter, vanilla, beans, chocolate, caffeine, and all citrus fruits and juices). I am not so sure what we're going to do when she's off formula, maybe we'll be crazy people and put her on toddler formula once she's 1 so we can continue to monitor the numbers correctly. We have to do this test once a month for however long and I'm not so sure how we're going to keep her off of real people food. She's got plenty of little chompers now (5!) so she just wants to EAT. But maybe after this test we'll have a better understanding of where to go and what to do.

We also have scans late next week or the week after, the dreadful scan time. We'll see how that'll go considering she no longer has a broviac and she'll have to have an IV in place for that.

She's amazing, she's doing great, and we couldn't be more proud of our little sunshine.

1 comment:

  1. I just want to tell you how extremely happy I was to see that Sweet BAby Mallory is in remission :) I have not been here in awhile, part of the BBC that donated, but think about her all the time. Your heading brought tears of joy to my eyes. She is beautiful and so is your family. I will continue to hold positive thoughts for your entire family and you will never have to go thru any of this again. You are strong, you are mom, you ARE a Warrior!!!!!