Tuesday came and went, and we still haven't gotten the pathology report yet. We did have a sit-down with one of the oncologists, and they only had "preliminary information". The waiting is the hardest part.
Based on preliminary information, it is Stage 4 neuroblastoma, with "favorable" N-MYC amplification.
The staging number isn't really an indicator of prognosis. Stage 4 is a scary number, because that's as high as the scale goes. But it is really just a description of her overall state. The devil is in the details, such as N-MYC amplification. Hers being "favorable" based on "preliminary" information is a small glimpse of joy for us.
Trust us, we will explain all of this once we get our data, and once we can understand it and put it into our own words.
There still can be a wolf in sheep's clothing somewhere in this mix, and that's why they made sure to mention over and over that this is preliminary information.
They are telling us now that next week Thursday they will have all of the information, and will have already met as a board of oncologists to plan her care. They will then reveal all of the information and her course of treatment to us.
On to the better news, we're being discharged tomorrow (Wednesday)! Mallory is recovering very nicely from her surgery, and we can do the rest of the tests in outpatient care. It is hard to leave before we have more information about our daughter, but it will be very nice to be able to relax at home.
We love you all, and thanks for the ongoing prayer and support!
-Ryan & Ash
Praising God for some answers / directions. Praying you are feeling prepared for taking care of things at home.ReplyDelete