Saturday, January 1, 2011

Summary of events (TL;DR version)

Ryan and Ashley's baby girl Mallory was two months old when she was diagnosed with Neuroblastoma cancer.


Timeline:

Monday November 28, 2011
Mallory's Pediatrician feels lumps during regular two-month checkup; orders ultrasound.

Tuesday November 29, 2011
Ultrasound reveals two, maybe three tumors. Oncologist called in, orders CT scan.
Oncologist informs us that Mallory has Neuroblastoma cancer.

Wednesday November 30, 2011
Echocardiogram of the heart to examine IVC. Surgeon doesn't get enough info, orders another ultrasound. Surgery plans are setup for Thursday

Thursday December 1, 2011
Goes under general anesthesia, has radioactive bone scan performed, has broviac central line installed, has left side adrenal gland and tumor removed. Did not require NICU; spent night in her own room.

Friday December 2, 2011
1st blood transfusion.
Results of bone scan came back normal; no spread into the bones.

Saturday December 3, 2011
Relaxing in room, recovering from surgery. No other news today.

Sunday December 4, 2011
No new news. Just relaxing and recovering. Anxious for test pathology report tomorrow.

Monday December 5, 2011
No path report yet. Patiently waiting.

Wednesday December 7, 2011
Got to go home! Meeting to discuss test results pushed back to next week (they are planning on Friday).
Started SSKI (Iodine) drops in preparation for MIBG scan

Thursday December 8, 2011
Received MIBG injection

Friday December 9, 2011
Propofol sedation, bilateral bone marrow draw (aspirate). MIBG scan performed.

Friday December 16, 2011
Met with doctors; official diagnosis: Stage 2B Neuroblastoma, intermediate risk. Planning 4 four rounds of chemo to neutralize right side tumor, no plans for surgery at this time.

Wednesday December 21, 2011
Weight 5.8kg Height 63cm
Admitted to hospital. Began round one of Chemotherapy. Received 100mg Carboplatine, 23mg Etoposide. 1mg Zophran every 6 hours. 5mg benadryl.

Thursday December 22, 2011
Round 1, Day two. 23mg Etoposide.

Friday December 23, 2011
Round 1, Day three. 23mg Etoposide.
80ml blood transfusion.
Discharged from hospital.

Thursday January 12, 2012
Dye study performed on double-lumen broviac, fibrin sheath formation,
Chemo Round 2, Received 110mg Carboplatin, 200mg Cytoxan, Mesna 50mg, Doxorubicin 6mg, Mesna 50mg (again), 2mg Zofran, 3mg Benadryl, 2mg Decadon

Friday January 13, 2012
Discharged.

Monday January 30, 2012
CT and catecholamine test peformed to analyze progress. RH adrenal tumor is growing, activity showing up on liver now too. Catecholamine is down.
Scheduled for surgery to biopsy RH tumor and replace broviac.

Thursday February 2, 2012
Admitted for surgery. Dr Robertson performed biopsy on RH adrenal tumor, removed existing broviac and inserted a new one.
Dr Robertson noted "a lot" of spots on the liver.
Morphine throughout the night.

Friday February 3, 2012
Inpatient, recovering from surgery. Multiple* does of morphine for pain.

Saturday February 4, 2012
Inpatient, doing better. Off the morphine, just Tylenol now.

Sunday February 5, 2012
Inpatient, hemoglobin was 8.2, so they did a reticulocyte count. Gave her a transfusion.
Discharged in time to see second-half of Superbowl (Giants beat the Patriots!)

Friday February 10, 2012
Met with Oncologist; Mallory is now officially a Stage 4 cancer patient.
Admitted for new, stronger Chemo (Chemo 2.0!)
Chemo Round 1, Day 1. Topotecan and Cytoxan.
(Reset chemo cycle count due to new protocol)

Saturday February 11, 2012
Chemo Round 1, Day 2, Topotecan and Cytoxan.

Sunday February 12, 2012
Chemo Round 1, Day 3

Monday February 13, 2012
Chemo Round 1, Day 4

Tuesday February 14, 2012
Chemo Round 1, Day 5

Wednesday February 15, 2012
Discharged

Sunday February 19, 2012
Went to ER due to Mallory running a fever and being lethargic and not eating. Got admitted.
Multiple antibiotics administered.
Blood transfusion.


...waaaaay behind on updates on this page, sorry!


Friday, May 18, 2012
Declared NED (No Evidence of Disease, aka in remission)!


17 comments:

  1. Your family is in our thoughts <3



    Hugs,
    The Danzi Family
    www.caringbridge.org/visit/kayladanzi
    www.bearsforsmiles.com

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  2. awww how sad, thoughts and prayers sent to a very brave little girl and her wonderful family. God bless xxx

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  3. I am wishing you and your family well!!!

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  4. All our prayers go out to you, your family and your sweet little Mallory. Let peace and health prevail.

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  5. I am praying for your sweet baby girl. She is beautiful and no one deserves to go through the fight she is fighting. So deeply sorry.

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  6. God bless your sweet baby. You are in our prayers!!

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  7. Thinking of this precious child and sending you all hugs and lots of prayers. This can be beaten - remain positive as you have been and keep the faith. You have a beautiful family. God bless you all, and that sweet baby Mallory. :)

    Sending love,
    The W's

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  8. I cant stop thinking about your doughter. I wish her all the best and hope she will win the fight. My prayers are going out to you. Good luck and i'll keep my fingers crossed for your little baby girl. God bless!!!

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  9. I pray every day for your precious child and all the family

    you need to give that baby alkaline water cancer cells hate the alkaline - how would you feel if it would save her life - I know I had cancer in August 1974 never had surgery or chemo and here I am today www.realwater.com check it out

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  10. "Anonymous" should be completely ashamed of promoting such complete bullshit like alkalinized "realwater".

    Common sense, and a very simple google search destroys all credibility of alkalinized water.

    Fortunately science wins over hype, and drinking a bottle of alkaline water will do nothing more than drinking tap water and taking a Tums.

    Idiots like this do far more damage than good. God forbid someone actually listens to this advice.

    Ashley and Ryan: I think you guys would be far better off listening to professionally trained oncologists, and ignoring lunatics like "Anonymous".

    God bless your sweet baby Mallory, and may the billions of dollars of research and thousands of hours of tireless labor work to her benefit and bring her complete healing.

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  11. This story breaks my heart. My goodness, shes so little, why should she have to go through this? Its not fair. You guys are incredibly strong people. I will pray for your sweet little baby every night.
    God Bless your family.

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  12. I found your site from Baby Center - I had a baby in September 2011 as well. Your little girl is so adorable and it brings tears to my eyes to read all that you have gone through. I can't imagine the heartache as a mother seeing her baby go through this. You are so smart and brave to have such an upbeat attitude (though I am sure it is tough to keep up at times). Best wishes to you and your little girl. Happy 5 month birthday coming up Mallory! She is an amazing fighter :)

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  13. don't give up Mallory...just fight!fight!fight!you will be in my prayers..

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  14. Presley and Amaeli (Twin girls born July 2011)February 24, 2012 at 6:34 AM

    Thank you for sharing your story, I'm sorry you have to experience this, and your little girl too. Best wishes and all our thoughts and prayers..

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  15. "Cancer, I'm gonna squash you like a bug"- You go girl! We are all rooting for ya!

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  16. I am thinking about and praying for Mallory and your family every day!

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  17. thoughts and prayers to your family...our baby was diagnosed.at 51/2..with undifferentiated soft tissue sarcoma...we are still fighting..2 surgeries and round 2/15week @ 3 different kinds chemo...stay strong...praying for baby mallory...god bless

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